Justin's Story

Wednesday, January 2, 2013

Every day a little more "normal"

I hope everyone had a wonderful holiday! We sure did!  Justin got plenty of new toys and games!  He had a great time with his Grandpa visiting, they had blood sugar battles LOL......Grandpa showed him how he gets his insulin through the pump, and Justin told me that he's cheating :)  I told him his Dr. said he may be able to use a pump within a year.  He's not so sure on that idea, because to him it looks like an IV and the tape was really bothering him from it.  I told him lets just wait and see and whatever he's comfortable with, and no need to worry about it right now.  

I'm still going through days of just guilt, sadness and anger.  Just the other day I was watching him eating his lunch and he was looking at the TV, so he didn't even notice me staring at him, I was just looking at his precious little face and into his eyes, and just feeling horrible that he has to deal with this.  I hate that he can't just eat whatever he wants, whenever he wants.....like it was.  I hate that we have to give him multiple shots everyday, and I hate when after the shot he grabs his arm and makes an "ow" face, it sucks when you have to inflict pain on your child.  He never complains about it or fights about doing it, he knows he has to.......but it sucks!  Most of the time it doesn't even bother him though.  

He is in camp this week, I wasn't even sure I was going to send him to camp at all ever again lol!  The staff at his school is great, they call me everyday, to make sure they are doing the right thing depending on what his number is. And Justin knows when he's low, his stomach hurts and he doesn't feel good.  So he lets them know right away so he can check his sugar.  He is still in the honeymoon stage, but I'm not sure how much longer as he's been running high at night.  I'm scared for that to end, I feel like right now his numbers are good, but I know once it ends it will be a lot harder to manage.  At least I'm expecting it to be much harder/different.






1 comment:

  1. I can only imagine how tough this is for you & Chris as well. But Jen, you are such a great mom! And you're doing a wonderful job. :)

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