Justin's Story

Friday, July 19, 2013

8 Months

Wow, 8 months since Justin was diagnosed.  What a blur the last 8 months have been honestly.  We have still kept up with our busy schedule...school, scouts, activities.  Easy....No, but we try our hardest to keep things as "normal" as possible for Justin.  So here's some numbers...just averages. Since diagnosis Justin has had to poke his finger about 1,200 times to test his BG, and has had about 960 insulin injections!  That is just crazy!!  And not once has he complained...he's my lil' superhero!  

Last night he was low, 67.  But for some reason he was feeling it more than he normally does.  He had a small bag of skittles, and came over to sit with me, he just wanted to be close and cuddle.  Normally he'll just get his candy and go back to watching TV or whatever he was doing (as long as its not running around lol)  In that moment I started to feel so bad again, I wanted to cry, I just held him and let him lay his head on my shoulder.  I told him I'm sorry he has to deal with this, and that he is doing a great job, and I'm so proud of him, fast foward 15 minutes & we rechecked and he was at 101 :)  So of course he says, "Mom, I think that deserves a picture"........I <3 him!!!




So I wrote the first half of this post this morning.  Fast forward to 8pm and Justin has had 4 lows today!!!  WTH??!!  We did nothing different, same insulin dose, same snack times....diabetes has it's own agenda.  I got lots of extra calls today from camp.  The director was worried it was something she did or didn't do.  I'm like nope, just diabetes being a pain in the butt!  Each time he treated it and it came back up into range.  Not sure what the heck is going on today, but D better behave, we have scout beach day tomorrow :) 

I love that his camp will call me whenever they check his BG, they always worry that their bugging me, I'm like not at all call as much as you need to :) He's having a great summer, lots of fun!!  

So the JDRF Children's Congress was this last week......I would LOVE to do that with Justin!!  I've read some of the other blogs of those who got to go, it's so awesome!!  Not sure what you have to do to go, but next time it comes up I'd like to try! :)

That's all I've got for now........ 














6 comments:

  1. Weve had lots of days like and days on the other end where we cant seem to get him to come down. Just keep an eye on it, if he is having lows at the same time several days in a row maybe he needs a ratio change.

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  2. Of course today was higher than it should be....sigh..
    I'll see how the next couple days go, thanks!

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  3. Sometimes I think it's just how the stars are aligned that day. Anyway I've noticed that M feels her lows more if they come on fast. For example she might feel a 67 if she's dropping rapidly. But the 2 times she was at 48 they came on slow and she didn't feel them. We also notice rebound highs the day after lows.
    For example the 48 was followed by a day in the 200's. Its enough to drive you crazy.

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    1. Thats exactly what happened! Ugh!! Justin is the same way with feeling the lows. It's scary!

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  4. Are you guys still honeymooning?? That could explain the lows. Children's congress happens every 2 years, I believe. I think we are going to apply next time... it would be a great opportunity for Justin(yours and mine :)

    That is a great picture, BTW!

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    1. I don't think he is...at his last visit his dr. thought he was still honeymooning a little bit. But she has already adjusted his dose because of crazy high numbers a couple times. I'm not sure how you know when it's over for sure :)
      That would be awesome if both our Justins got picked! The ladys blog I read said she was just amazed being in a room full of people that just "get it" :)

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