Justin's Story

Tuesday, March 5, 2013

The end of the honeymoon?? Maybe........

This past weekend was our first JDRF Walk to cure diabetes.  Our whole team had a lot of fun, and Justin was happy his friends were there supporting him.  There was stuff for the kids to play around with, and plenty of different companies there showing off their products and handing out goodies.  We got Disney cookbooks, books, a BG meter, I also was checking out some of the pumps.  Not sure if Justin will want to do that, I'm sure eventually he will, just not yet. Dr. said it would be 6 months to a year before we even discuss that.   I thought the omnipod looked really neat.  No tubing! We'll see.

I feel like diabetes is a huge game.....of keep the sugar down.  He has been having some higher than normal numbers, and for no reason.  Had a few numbers over 300! Yikes!!  Of course it's came down and no ketones, but darn it's frustrating! I really think this is the end of the honeymoon, I will give it a few more days, that way they'll be a high pattern she can see, and email the numbers to the Dr. so she can let us know what to adjust with the insulin.  Today at school he was borderline where he needs insulin for his sliding scale, so I had them give him 1 unit since he's been running high. Then he ended up a little low around 75.....FRUSTRATING!!  

Tonight while helping him with a shower, I noticed little bruises on his arms and legs from injections...that made me tear up, just a reminder of what he has to deal with for the rest of his life.  He never complains about it, he is so brave.  He makes me so proud how he's dealing with all of this.  He tells people that he is a type 1 diabetic, and what that means.  He really is amazing! 

I've already learned that there will always be people that just don't "get it".  I've already heard plenty of ridiculous comments, that I just have a let roll off or I may go nutsThey think he'll grow out of it, or its because he ate too much sugar.  My mission is to make sure people know the difference between type 1 and 2.  Every chance I get, I will explain that :)  

Here's some pictures from the walk last Saturday, Thanks again to Product Advance for sponsoring our awesome shirts!! 

My Family :)

And were off!

Walking for a cure!

Justin with one of his nurses from his hospital stay

Justin and his Endocrinologist Dr. Damian




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