Justin's Story

Thursday, May 19, 2016

The Healthcare Experience-Diabetes Blog Week 2016

Topic for Thursday:
Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What's your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!


Diabetes Blog Week



How could healthcare be improved for us?  

Justin's Endocrinologist is amazing, I honestly can't think of anything that would make his visits there better.  She's always a step ahead of me with school forms and other paperwork.  She always takes plenty of time with us, answering all my questions, & going over all his data.  At our last visit she was trying to help me with some basal rates and figure how how to fix a trouble spot during the afternoon we were having.  She pulled up a chair and scooted over to me with all the data and we discussed together how we could fix it.  She has just clicked with us since day 1 in the hospital.  There was a few months when I thought we weren't going to be able to see her anymore because of insurance and I was devastated.  When we finally got that straightened out and made an appointment, she was so excited to see us.  She came in and gave Justin the biggest hug ever.  He always loves talking to her about EVERYTHING.....she just laughs at him the whole time.  She is never demeaning with his A1C, even if it goes up shes very encouraging & lets figure this out, it's ok kind of attitude. And if it's a great one she celebrates it for us!  We are very blessed with her!

Our insurance has been wonderful too.  Authorizations done in a timely manner, it was less than a month from the time we started pump process until we were hooked up!  And getting the supplies for both the pump and the Dexcom have been ridiculously easy for us as well.  I realize this is not the norm for this and am super thankful for it.  Right now I'm trying to get the test strips authorized that he could use with the pump meter remote.  So we will see how this goes......

My biggest frustration would be insurance companies having preferred items, insulins, test strips, pumps, there really needs to be a choice on the patients behalf since these items are being used on a daily basis to keep you alive.  Some being attached to you 24/7, there should be a choice what you wear. Luckily for us everything we have needed has been covered....so far. 



3 comments:

  1. No matter how good things are, they could always be better. It is the one thing I have learned over the many years with diabetes.

    I referred your blog to the TUDiabetes blog page for the week of May 16, 2016.

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