If there was one thing I wish she could see it would be the simple things like, when we are leaving church and each kid gets to pick a piece of candy on the way out, he can still take one, but has to wait for the right time to eat it, while the other kids are eating it on the way out and he's begging me to eat it now. Or at school when the kids bring in cookies or cupcakes for a birthday and he has to go check his sugar first, and then we decide if its ok for him to have. (Most of the time it is fine, and we take the frosting off the cupcakes, he doesn't like it anyway) But just the sound of disappointment in his voice at times makes me so sad. Just the daily struggle with trying to let him still enjoy things other kids can just eat whenever, and keeping the BG numbers in check.
The one thing I wouldn't want her to see is that I have complete emotional breakdowns. I can't do anything but cry. When we've been at her office, she's always is telling me how well we are all handling everything, and for the most part we are. We are going through the motions really, we have no choice if we want our son to be healthy. We put on our happy faces and deal with it. But every so often it gets the best of me, and I feel like I just can't deal with it anymore. I get tired of living by the clock, and making sure he eats at certain times, instead of when he's ready to eat, and begging him at times to eat a snack even though he's not hungry. But I don't want him to go low, and he doesn't completely understand that yet.
|This is Justin with his awesome endo Dr. Damian @ our local JDRF Walk|
You'll have to excuse the koolaid(crystal light) mustache LOL