tag:blogger.com,1999:blog-33833420833323212042024-03-19T16:00:23.844-04:00Bustin' Diabetes for JustinOur son Justin was Diagnosed with Type 1 diabetes on November 19, 2012, at 7 years old. Our lives quickly got turned upside down.
We are learning to live with this disease, and invite you to follow along. This is not an easy ride, but with our family and faith we are learning to deal with it and all the emotions that come with it. JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.comBlogger75125tag:blogger.com,1999:blog-3383342083332321204.post-70540273746877409942018-09-16T16:49:00.000-04:002018-09-16T16:50:49.999-04:00Old Feelings & New Technology! <div style="text-align: center;">
<span style="font-family: Verdana, sans-serif;">It’s been a long time since I’ve posted anything on here. We’re slowly getting closer to 6 years with Diabetes. Facebook reminds me of the months leading up to that day. And some photos just really take me back to the feelings after diagnosis. </span></div>
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<span style="font-family: Verdana, sans-serif;">This pic of Justin eating popcorn at Disney was about 4 months before T1D. I remember afterwards looking at this picture and being extremely sad that he would never be able to do that again, how would I count it, how much would he eat? </span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Verdana, sans-serif;">4 months before T1D</span></td></tr>
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<span style="font-family: Verdana, sans-serif;">Fast forward almost 6 years and guess what? He's eating popcorn from a bucket at Universal Studios. I have no idea the exact carb count, but I've become damn good at swagging carbs. (That stands for Scientific Wild Ass Guess) Walking around theme parks he tends to run low, so bring on the snacks! </span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Verdana, sans-serif;">Mom and Justin snacking on popcorn, our fave snack :)</span></td></tr>
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<span style="font-family: Verdana, sans-serif;">Its so hard at first, your thrown so much information and your life is flipped upside down. But it really does get easier and normal. It's just his normal, our normal and we do what we have to so that it doesn't rule our life. Yes at times it's much more tedious than others, but for the most part it's not on the front burner of our daily life. </span></div>
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<span style="font-family: Verdana, sans-serif;">Other big news in his diabetes life is that he got a new pump! He can't wait to get started, we have to schedule training first. He got the T:slim x2 and the new Dexcom G6 which will connect to the pump and suspend his basal if it predicts a low. Pretty awesome technology and I'm so thankful that Justin gets to use it! </span></div>
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<span style="font-family: Verdana, sans-serif;">That's all I've got for now, thanks for reading! </span></div>
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<span style="font-family: Verdana, sans-serif;"></span><br />JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-11627721574638537492017-11-19T16:25:00.000-05:002017-11-20T15:02:06.268-05:001,825 days....thats 5 whole years!<span style="font-family: Trebuchet MS, sans-serif;">5 years ago Justin's life was forever changed. This year is really hitting me harder than previous years. But I look at Justin and his strength simply amazes me! He is turning into such a kind, wonderful young man, who happens to have this thing called Type 1 diabetes. 5 years ago our world as we knew it was gone, and we were forced into a new life that we didn't ask for. We wouldn't have made it as gracefully as we have without our amazing support system. Justin immediately had a T1D buddy in his Grandpa, and I called him just about every night for a while. We found our tribe of parents and kids his age that had T1D as well and they make us feel at home. Those ladies are my rocks!</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Thank you to all of those who play or have played a special part in our journey so far, and thank you to those who have learned right along with us and helped care for Justin.</span></span><br />
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<span style="font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">When you take the time to learn what Justin is dealing with it shows you care.</span></span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you walk with us it shows him you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you stand up to those making jokes about diabetes it shows you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you ask questions it shows you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you include him it shows you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you are kind it shows us you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you sit with him while waiting for a low to come up it shows you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you don't freak out when he's testing his blood it shows you care.</span><br />
<span style="font-family: Trebuchet MS, sans-serif; font-size: xx-small;">When you notice him first instead of T1D it shows you care.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">There are so many ways to show him love. He is so much more than T1D, but its part of him and understanding is very much appreciated!</span></span><br />
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I couldn't be more proud of how he handles everything. So here's to the next year of kicking T1D butt kiddo! You've got this! And if you think you don't I'll be right here for you to fall on.</span><br />
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-82829608659848471502017-05-19T23:02:00.000-04:002017-05-19T23:02:14.489-04:00MORE THAN DIABETES #DBLOGWEEK DAY 5<span style="background-color: white; font-size: 16px;"><span style="font-family: Verdana, sans-serif;"><i>Lets wrap up the week by sharing a little more about ourselves, beyond the chronic illness we or our loved ones live with. Share an interest, hobby, passion, something that is YOU. If you want to explore how it relates to or helps with diabetes you can. Or let it be a part of you that is completely separate from diabetes, because there is more to life than just diabetes! (This topic is a suggestion from the 2016 #DBlogWeek survey.)</i></span></span><br />
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<span style="background-color: white; font-size: 16px;"><span style="font-family: Verdana, sans-serif;">Justin definitely more than diabetes. Although at times it seems it consumes us as that's what I often post about on social media, especially near walk time! But there are lots of things he loves to do, I'm just going to share a bunch of pictures and let them do the talking. </span></span><br />
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<tr><td class="tr-caption" style="text-align: center;">Justin and his "Kid-tecture" project from last summer. </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting ready for a ride in a race car</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Loves space and rockets! </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Go-Carts! </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Loves star wars</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">He loves to make art!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFydKO0r_oAcy6hVJ7Bdhl13GtiISWVzehhzD6V5745y0XLz9EZ6JEXhQ8mLXdpK8_W5fTqcLHjJ8ZyiXYxS8DCdp_LDCQe0PZMKYWSsgA5LkpyP7mB958w9pflda6xr00x0WTlhDD8mc/s1600/9bdbdcb4-9f26-43b4-9d3f-42b30221116a" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFydKO0r_oAcy6hVJ7Bdhl13GtiISWVzehhzD6V5745y0XLz9EZ6JEXhQ8mLXdpK8_W5fTqcLHjJ8ZyiXYxS8DCdp_LDCQe0PZMKYWSsgA5LkpyP7mB958w9pflda6xr00x0WTlhDD8mc/s400/9bdbdcb4-9f26-43b4-9d3f-42b30221116a" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He does well in school</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdglvATICrYGQLMi5ggXD2H4fUSaRI0o6PiCHFyDQvIekCL1-7LOIHIG-TcUEUXHQUc74LnjMVGNUCjhI50Xd8KrFpfiLNdzAX_CrS0U5b1wcEdp1WTHNDXY2xtoxUO_N-DQur9FxvnLE/s1600/d8924e4a-c966-414c-96e6-eded04fe8997" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdglvATICrYGQLMi5ggXD2H4fUSaRI0o6PiCHFyDQvIekCL1-7LOIHIG-TcUEUXHQUc74LnjMVGNUCjhI50Xd8KrFpfiLNdzAX_CrS0U5b1wcEdp1WTHNDXY2xtoxUO_N-DQur9FxvnLE/s400/d8924e4a-c966-414c-96e6-eded04fe8997" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">More art! He loves art!!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGwNc-wl4Br_eBGE8LZqT0l2Tp_ZgGQ0TQ_0AdcQI_i6dRhT8I9L7p6P8RF6cu4W3i4XriyDLAZY2p-E109QLUwnpxu1D3iZiJ5SGraHwl10M_qwgKh2Rf1_4XGroXIHL0AgCopygJOLA/s1600/b2b85799-4e06-4d58-8c57-740117b3aca2" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGwNc-wl4Br_eBGE8LZqT0l2Tp_ZgGQ0TQ_0AdcQI_i6dRhT8I9L7p6P8RF6cu4W3i4XriyDLAZY2p-E109QLUwnpxu1D3iZiJ5SGraHwl10M_qwgKh2Rf1_4XGroXIHL0AgCopygJOLA/s400/b2b85799-4e06-4d58-8c57-740117b3aca2" width="225" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Going to the movies is a favorite activity</td></tr>
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<span style="font-family: Verdana, sans-serif;">Thank you for checking out my blog during #DBlogWeek 2017! </span></div>
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com1tag:blogger.com,1999:blog-3383342083332321204.post-53748059519841578002017-05-18T15:43:00.000-04:002017-05-18T15:44:02.331-04:00THROWBACK THURSDAY-WHAT BRINGS ME DOWN #DBLOGWEEK DAY 4<i style="font-family: verdana, sans-serif;"><span style="background-color: white; font-size: 16px;">Today let’s revisit a </span><a href="http://www.bittersweetdiabetes.com/p/2014-diabetes-blog-week-topics-posts.html" style="background-color: white; font-size: 16px; font-weight: bold;" target="_blank">prompt from 2014</a><span style="background-color: white; font-size: 16px;"> - May is </span><a href="http://www.mentalhealthamerica.net/may" style="background-color: white; font-size: 16px; font-weight: bold;" target="_blank">Mental Health Month</a><span style="background-color: white; font-size: 16px;"> so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope? (Thanks again to </span><a href="http://strangelydiabetic.com/" style="background-color: white; font-size: 16px; font-weight: bold;" target="_blank">Scott</a><span style="background-color: white; font-size: 16px;"> for this 2014 topic.)</span></i><br />
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<span style="background-color: white;"><span style="font-family: "verdana" , sans-serif;">The emotional side of caring for a child with T1D is for me the hardest part. For the most part we just do what we need to and diabetes isn't the main event all day. Justin handles the finger sticks, pump site changes and dexcom site changes like a pro and with no complaints. But there are times when I will think about his future or a site change hurt and there are tears in his eyes but he stops them and says he's fine, its ok. Those are the times it's not ok.....at all. </span></span><br />
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<span style="font-family: "verdana" , sans-serif;">I absolutely hate that I can't take this away. And while we allow him to everything he would have done if T1D never came into his life, his childhood isn't the same. It's not normal to have to stick your child with needles. And when it hurts enough to make him tear up, it breaks my heart even more than it already is. </span><br />
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<span style="font-family: "verdana" , sans-serif;">I've cried many tears over the fact that he has T1D, I've cried in fear that he will somehow hate me when he's older and that his memories will be of me sticking him with needles. I cry when he's over it and frustrated. Me and Justin have sat together and cried while I'm holding him, I just let him vent and get it all out. It's been a long time since he's done that, but it helps. </span><br />
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<span style="font-family: "verdana" , sans-serif;">Also he had a counselor for a little while because he was having trouble dealing with diabetes and just very angry about it. It helped, she talked to him about ways to manage his anger and in the end it came down to he was upset when he was at school because Mom and Dad weren't there to help with diabetes care. He is now independent at school, besides going to the clinic for lunch so numbers can be logged. </span><br />
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<span style="font-family: "verdana" , sans-serif;">Another thing I always say is that I worry about Justin's mental health as much or more than I do about blood sugars. For example; He calls from school because a classmate brought cupcakes for their birthday, his blood sugar is 280. I refuse to tell him he cannot eat the treat with the rest of his friends because of his blood sugar. Yes I know that a cupcake isn't a great choice when your bg is high, but he gives the appropriate amount of insulin to correct and cover the carbs. Then he gets to enjoy the celebration with everyone else instead of sitting there watching everyone eat (That image alone is heartbreaking for me) In the long run, I find this much more detrimental. And yes I know all about diabetes complications, I work for a podiatrist and have seen way more than I care to share in this post. But I think about the whole picture, his whole life with diabetes tagging along. </span><br />
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<span style="font-family: "verdana" , sans-serif;">My thinking wasn't always this way, but I have learned to roll with it, otherwise diabetes will be controlling us instead of us controlling it. </span><br />
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<span style="background-color: white;"><span style="font-family: "verdana" , sans-serif;">I try to empower Justin so he knows he can truly do ANYTHING he wants, and he's got this. </span></span><br />
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<span style="background-color: white; color: #755a2a; font-family: "pt sans"; font-size: 16px;"><br /></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-32431889133783963212017-05-17T11:55:00.001-04:002017-05-17T12:02:25.725-04:00THE BLAME GAME #DBLOGWEEK DAY 3<i><span style="font-family: Verdana, sans-serif;"><b><span style="font-size: 16px;">Having diabetes often makes a visit to the doctor a dreaded experience, as there is invariably bad news of one kind or another. And sometimes the way the doctor talks to you can leave you feeling like you’re at fault. Or maybe you have a fantastic healthcare team, but have experienced blame and judgement from someone else in your life – friend, loved one, complete stranger. Think about a particularly bad instance, how that person talked to you, the words they used and the conversation you had. Now, the game part. Let’s turn this around. If you could turn that person into a puppet, what would you have them say that would leave you feeling empowered and good about yourself? Let’s help teach people how to support us, rather than blame us! (Thank you, </span><a href="http://brian-the-bsc.blogspot.com/" style="font-size: 16px;" target="_blank">Brian</a><span style="font-size: 16px;">, for inspiring this topic.)</span></b></span></i><br />
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<span style="font-family: "verdana" , sans-serif;">I can only talk from a moms point of view, but I can't even count the number of times people both close and not have said some pretty hurtful things. Some may not even notice that they do it, or that it's hurtful. </span><br />
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<li><span style="font-family: "verdana" , sans-serif;">I've been told that he has the "bad type" of diabetes. </span></li>
<li><span style="font-family: "verdana" , sans-serif;">I've been told that its because of what I ate while pregnant</span></li>
<li><span style="font-family: "verdana" , sans-serif;">I've been told I allowed him juice too early or too much</span></li>
<li><span style="font-family: "verdana" , sans-serif;">I've been told that he must eat a lot of junk food</span></li>
<li><span style="font-family: "verdana" , sans-serif;">I've been told that if he "eats right" he can stop insulin</span></li>
<li><span style="font-family: "verdana" , sans-serif;">I've been told that certain "natural" drinks and magical potions will cure him</span></li>
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<span style="font-family: "verdana" , sans-serif;">Instead of making assumptions when you don't know about something you should try and offer support, and I realize that people will share their "cures" meaning well, but I'm not sharing random things with people to cure any other disease. I guess maybe I'm in the minority, but even before diabetes I wouldn't have said these things to anyone. </span><span style="font-family: "verdana" , sans-serif;">Maybe say I'm sorry your going through that, It must be hard, if there is anyway I can help let me know!" Not just hear the word diabetes and make assumptions about my parenting or my child. </span></div>
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<span style="font-family: "verdana" , sans-serif;">Now while many have said hurtful things, I have way more people around that are very supportive. Obviously our local T1D families are the best and understand completely what it's like! But I have a few good friends who will listen to me vent or talk about T1D and even though they don't understand that language will listen and try to learn and offer support any way they can. </span></div>
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<span style="font-family: "verdana" , sans-serif;">Try and ignore(yes it's hard) those who say hurtful things and know that they are just misinformed and trying to help even though it doesn't seem like it. </span></div>
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<span style="font-family: "verdana" , sans-serif;">Embrace those who stick by your side on this journey, they will be your lifeline and keep you from going crazy! </span></div>
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<span style="background-color: white; color: #755a2a; font-family: "pt sans"; font-size: 16px;"><br /></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com4tag:blogger.com,1999:blog-3383342083332321204.post-83388495404041509992017-05-16T10:40:00.001-04:002017-05-17T12:02:15.835-04:00THE COST OF A CHRONIC ILLNESS #DBLOGWEEK DAY 2<span style="font-family: Verdana, sans-serif;"><i><b><span style="background-color: white; font-size: 16px;">Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern? Are there other factors such as accessibility or education that cause barriers to your diabetes care? (This topic was inspired by suggestions from </span><a href="http://www.radiabetes.com/" style="background-color: white; font-size: 16px;" target="_blank">Rick</a><span style="background-color: white; font-size: 16px;"> and </span><a href="https://seejendance.com/" style="background-color: white; font-size: 16px;" target="_blank">Jen</a><span style="background-color: white; font-size: 16px;">.)</span></b></i></span><br />
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<span style="background-color: white;"><span style="font-family: "verdana" , sans-serif;">Great topic to spread awareness about the cost of a preexisting condition. Type 1 diabetes, is a very expensive disease. For starters i'm going to list the prices of items we need for Justin's care. These will be approximate prices that I've found on various medical supply websites, without insurance or any other assistance. </span></span><br />
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<span style="font-family: "verdana" , sans-serif;">INSULIN- $270.00 (FOR 1 VIAL, WE USE 2 A MONTH FOR JUSTIN)</span><br />
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<span style="font-family: "verdana" , sans-serif;">ONE TOUCH </span><br />
<span style="font-family: "verdana" , sans-serif;">TEST STRIPS- $145.00 (FOR 1 BOX OF 100, WE USE 2 A MONTH) </span><br />
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<span style="font-family: "verdana" , sans-serif;">DEXCOM TRANSMITTER-$745.00 (USE 1 EVERY 3 MONTHS)</span><br />
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<span style="font-family: "verdana" , sans-serif;">DEXCOM SENSOR- $857.00 (FOR 1 BOX WITH 4 SENSORS, 1 BOX IS GOOD FOR US FOR 2 MONTHS)</span><br />
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<span style="font-family: "verdana" , sans-serif;">DEXCOM RECEIVER-$1,200.00 (REPLACED ONCE A YEAR IF NEEDED)</span><br />
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<span style="font-family: "verdana" , sans-serif;">INSULIN PUMP SITES-$190.00 (FOR 1 MONTH SUPPLY)</span><br />
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<span style="font-family: "verdana" , sans-serif;">INSULIN PUMP CARTRIDGES-$55.00 (FOR 1 MONTH SUPPLY)</span><br />
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<span style="font-family: "verdana" , sans-serif;">INSULIN PUMP-$8,000.00</span><br />
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<span style="font-family: "verdana" , sans-serif;">*I'm not including items such as skin tac, unisolve, alcohol wipes, batteries</span><br />
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<span style="font-family: "verdana" , sans-serif;">TOTAL MONTHLY COST WITHOUT INSURANCE FOR US: <b> $1932.00 </b> (NOT INCLUDING PUMP, THE DEXCOM TRANSMITTER AND RECEIVER) </span><br />
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<span style="font-family: "verdana" , sans-serif;">It's beyond ridiculous! </span><br />
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<span style="font-family: "verdana" , sans-serif;">Justin was on a medicaid program and we were receiving all of his supplies for no cost except for our monthly premium, which was not much. His insulin and test strips were $5. Unfortunately because of a raise my husband got (not much mind you) we no longer qualified for that program. So now we have a plan with a deductible and were saving money onto an HSA account to help pay for it. So whatever raise was gotten is gone.......</span><br />
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<span style="font-family: "verdana" , sans-serif;">I can totally understand why people choose not to have a dexcom or a pump. Just the insulin alone is way too expensive. </span><br />
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<span style="font-family: "verdana" , sans-serif;">The high cost of care for Type 1 diabetes can definitely impact ones care, you may not test your blood sugar as often to save strips, or not take as much insulin as you need. These things shouldn't be happening. It's truly beyond me why other countries healthcare is a right and here in the US it's a business. People are dying because they can't afford insulin. It's not right, that shouldn't be happening and it really makes me angry. </span><br />
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<span style="font-family: "verdana" , sans-serif;">When in a pinch ask your doctor for some supplies, heck ours just gave us a box of pump sites! Shes's given me test strips and insulin as well. It can't hurt to ask. There are also "pay it forward" groups in which people will trade or give supplies, which have recently been in the news as the cost of insulin went up again. </span><br />
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com4tag:blogger.com,1999:blog-3383342083332321204.post-24463386525496557962017-05-15T15:24:00.000-04:002017-05-17T12:02:38.976-04:00DIABETES AND THE UNEXPECTED #DBLOGWEEK<i><span style="font-family: Verdana, sans-serif;"><b><span style="background-color: white;">Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random. What are your best tips for being prepared when the unexpected happens? Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected? (Thank you, </span><a href="http://jazzyted.blogspot.co.uk/" style="background-color: white;" target="_blank">Heather</a><span style="background-color: white;">, for inspiring this topic!)</span></b></span></i><br />
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<span style="background-color: white;"><span style="font-family: "verdana" , sans-serif;">Being prepared with T1D......Things we carry with us on a daily basis for things around town include, meter(in his case we also have batteries for the pump & meter and a syringe in case pump site falls off I could take insulin from the pump),low snacks, glucagon. As far as trips go, I pack like its the zombie apocalypse LOL!! What ever diabetes could throw at us I'm ready. I use a big Tupperware and pack all diabetes supplies in it, except for the insulin which is in the cooler. My best tip would be just to not get so uptight about carrying so much stuff everywhere, if your going to the grocery store or target or something like that you most likely aren't that far from your house. So if a pump site comes off, I have a syringe and can get some insulin from the pump if he needs it. We can get home and put a new site on. I don't feel the need to run out to the car and put a new one on immediately. I realize people do and that's OK, just not how we roll. I've learned to do what YOUR comfortable with. I would hate for someone to read this and stop carrying things that makes them secure. Whatever works for you and your T1D is what you should be doing!</span></span><br />
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<i><span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="background-color: white; color: #755a2a;"><br /></span></span></i>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-28844698661053215402016-09-23T10:04:00.000-04:002016-09-23T10:23:02.089-04:00It's been a while<span style="font-family: "verdana" , sans-serif;">Hi everyone!</span><br />
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<span style="font-family: "verdana" , sans-serif;">It's been a while since I've blogged. Hope everyone had a great summer! </span><br />
<span style="font-family: "verdana" , sans-serif;">We sure did. It went by so fast, as always :)</span><br />
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<span style="font-family: "verdana" , sans-serif;">He celebrated his 11th birthday at the end of May, we surprised him with a ride in a race car at Daytona International Speedway. Needless to say that he absolutely LOVED it!! </span><br />
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<span style="font-family: verdana, sans-serif;">Justin went to sleep away diabetes camp again this year. He had a great time, he was bunking with 2 of his local friends. He also made a couple of friends while he was there. They had some new things this year that he was really excited about. A slide into the lake and a rope course. He said both were lots of fun. We redid Justins room while he was away, and it turned out great! </span><span style="font-family: "verdana" , sans-serif;">He was so excited when we got home and he seen it! </span><br />
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Super fun week for these guys!! </div>
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Justins Room Remodel :)</div>
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Before:</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZXAHCOto_4pjs9qPT2EAVhP0nTGGJWfCtW9DCA113eTkxBPjS5qrATJgfQRtrWT6xv0ZZkbhdHMM9WS88AgWn6lt1-hya6WoQU38akTmCYHUiiT81Zes77LNd81_53hMUZTwMWqoFtMw/s1600/BLOG6.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZXAHCOto_4pjs9qPT2EAVhP0nTGGJWfCtW9DCA113eTkxBPjS5qrATJgfQRtrWT6xv0ZZkbhdHMM9WS88AgWn6lt1-hya6WoQU38akTmCYHUiiT81Zes77LNd81_53hMUZTwMWqoFtMw/s200/BLOG6.jpg" width="200" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZ2nNc4QeVLahPQM5V40ZAgUNw8xI6fcMgQCQOZgAhaVb8oPudgjRNizuO8fVcfa1Zbg3NszaWZyD-ffyALEzBw5OqYMlI4A1UMoq93svWGOHAWhltHK2wLVSYfNdXFJiWK1nQlbaCTXY/s1600/BLOG7.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZ2nNc4QeVLahPQM5V40ZAgUNw8xI6fcMgQCQOZgAhaVb8oPudgjRNizuO8fVcfa1Zbg3NszaWZyD-ffyALEzBw5OqYMlI4A1UMoq93svWGOHAWhltHK2wLVSYfNdXFJiWK1nQlbaCTXY/s200/BLOG7.jpg" width="150" /></a></div>
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After:<br />
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<span style="font-family: verdana, sans-serif;">We took him to the Kennedy Space Center for the first time, that place was amazing! We will definitely go back, as there were things we didn't get to see. Justin wants to be the first astronaut with T1D in space.......I told him I want him to do whatever his heart desires, but I'd prefer he stay in this atmosphere LOL.</span></div>
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<span style="font-family: "verdana" , sans-serif;">We also went to Sanibel Island, the weather was lousy while we were there but we made the best of it and found some really cool shells. </span><br />
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<span style="font-family: "verdana" , sans-serif;">He also participated in a kids architect program at the Norton Museum, it was a month long program and the kids started from drawing their museum design to actually building a model of it. They were on display at the museum during their "Art after dark" event. We were so proud of him!</span><br />
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<tr><td class="tr-caption" style="text-align: center;">Showing off his Pokemon museum model :)</td></tr>
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<span style="font-family: "verdana" , sans-serif;">Diabetes has been there for everything, playing nicely most of the time. His most recent endo visit was great, she made some adjustments, and his A1C went down since last time and it was a great number last time! I never share that number on social media, diabetes is hard enough and its so easy to get caught up comparing and feeling like your not doing enough. Everyone follows different diets or plans and doses different and does what works for them. So for us and how we handle diabetes it's a great number!</span><br />
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<span style="font-family: "verdana" , sans-serif;">The month prior to that visit was pretty rough with crazy high numbers, randomly, no explanation. So I figured puberty must be peeking around the corner. Dr. said not quite yet...Whew! LOL She told us numbers usually will get higher overnight/very early morning and after breakfast. So she adjusted some basals and that seems to have helped with the highs. I went from feeling like I knew what I was doing to feeling like a total newbie again, I'm feeling better about it again though. Its just frustrating and your nervous to bump up the dose too much. </span><br />
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<span style="font-family: "verdana" , sans-serif;">Justin has also enjoyed writing his Beyond Type 1 penpal in Colorado. He sent him a postcard from the Kennedy Space Center. Since he's into space too :) Maybe they can space travel together!</span><br />
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<span style="font-family: "verdana" , sans-serif;">Enjoy the pics of our summer, and Justins awesome new pump decals from Pump Peelz He totally has Pokemon-itis HaHa!</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgd4srAmLlTXzWMDVERTK-TMkSxqjg7tJj9xziQGsYAootHGfLeAJfraPsFacB_uydNYTtvUwV5FheR-xLz6xbKp6s13shOxHfF1uRkIFTeUzKujGAWs-WtSWKJOefDpeF01uOsYF7dokA/s1600/blog22.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgd4srAmLlTXzWMDVERTK-TMkSxqjg7tJj9xziQGsYAootHGfLeAJfraPsFacB_uydNYTtvUwV5FheR-xLz6xbKp6s13shOxHfF1uRkIFTeUzKujGAWs-WtSWKJOefDpeF01uOsYF7dokA/s200/blog22.jpg" width="149" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9TR7pzkGPPH-nV8ZiW8gKkptZNeAnZIYJ8NjP3AN7wBAQuZuVJa9SmEYgjE075lgWtNj3IQbsr89KRCyMCHGe811Lhyg5dOROyrmyBhNYfCmdQPftakxhUQShmL0MKojI4LQowADyGu4/s1600/BLOG19.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9TR7pzkGPPH-nV8ZiW8gKkptZNeAnZIYJ8NjP3AN7wBAQuZuVJa9SmEYgjE075lgWtNj3IQbsr89KRCyMCHGe811Lhyg5dOROyrmyBhNYfCmdQPftakxhUQShmL0MKojI4LQowADyGu4/s200/BLOG19.jpg" width="200" /></a></div>
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<span style="font-family: "verdana" , sans-serif;"><br /></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-66993960231989395632016-05-20T14:24:00.003-04:002016-05-20T14:24:21.805-04:00Tips and Tricks-Diabetes Blog Week 2016<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: Verdana, sans-serif;">Todays Topic:</span></span><br />
<span style="font-family: Verdana, sans-serif;"><span style="background-color: white; font-size: 16px; line-height: 25.6px;">Let's round out the week by sharing our best diabetes tips and diabetes tricks. From how you organize supplies to how you manage gear on the go/vacation (beach, or skiing, or whatever). From how you keep track of prescription numbers to how you remember to get your orders refilled. How about any “unconventional” diabetes practices, or ways to make diabetes work for YOU (not necessarily how the doctors say to do it!). There's always something we can learn from each other. (Remember though, please no medical advice or dangerous suggestions.) </span></span><br />
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<span style="font-family: Verdana, sans-serif;">I get lots of my tips & tricks from other D-Moms, not sure how much of how we do things differently that others but I'll be happy to share some things with you.</span><br />
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<span style="font-family: Verdana, sans-serif;">I have a storage cabinet with all his supplies in it. I organize everything according the expiration date. So that I'll grab the soonest expiring first. I keep a tupperware right next to the insets and dexcom sensors and empty a box into it. I use those up and empty the next box in. Kinda like a store rotating stock.</span><br />
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<span style="font-family: Verdana, sans-serif;">Justin's pump is waterproof so swimming and the beach isn't such a worry. He wears his dexcom site on his arm, and when he's going in the ocean I wrap it with CoFlex. I put the receiver in 2-3 baggies and in the "dry bag" We've lost one to accidental swim in the pool so I'm over cautious with it now. </span><br />
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<span style="font-family: Verdana, sans-serif;">My favorite trick is my pebble watch, I know lots of people are rocking them too. We have ours using the share, and it's been great! It's awesome when were out and about, it's so convenient to just look at my wrist and know where he's at. And I love that I can text Justin and he gets the notification on his. Technology sure is a great tool! </span><br />
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<span style="font-family: Verdana, sans-serif;">Thank you so much for checking out my blog this week, it's been fun sharing with you!</span><br />
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com1tag:blogger.com,1999:blog-3383342083332321204.post-61036822109374647062016-05-19T11:40:00.002-04:002016-05-19T11:40:54.809-04:00The Healthcare Experience-Diabetes Blog Week 2016<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: Verdana, sans-serif;">Topic for Thursday:</span></span><br />
<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: Verdana, sans-serif;">Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What's your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!</span></span><br />
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<span style="font-family: Verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">How could healthcare be improved for us? </span></span><br />
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<span style="font-family: Verdana, sans-serif;"><span style="background-color: white;"><span style="line-height: 25.6px;">Justin's Endocrinologist is amazing, I honestly can't think of anything that would make his visits there better. She's always a step ahead of me with school forms and other paperwork. She always takes plenty of time with us, answering all my questions, & going over all his data. At our last visit she was trying to help me with some basal rates and figure how how to fix a trouble spot during the afternoon we were having. She pulled up a chair and scooted over to me with all the data and we discussed together how we could fix it. She has just clicked with us since day 1 in the hospital. There was a few months when I thought we weren't going to be able to see her anymore because of insurance and I was devastated. When we finally got that straightened out and made an appointment, she was so excited to see us. She came in and gave Justin the biggest hug ever. He always loves talking to her about EVERYTHING.....she just laughs at him the whole time. She is never demeaning with his A1C, even if it goes up shes very encouraging & lets figure this out, it's ok kind of attitude. And if it's a great one she celebrates it for us! We are very blessed with her!</span></span></span><br />
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<span style="font-family: Verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">Our insurance has been wonderful too. Authorizations done in a timely manner, it was less than a month from the time we started pump process until we were hooked up! And getting the supplies for both the pump and the Dexcom have been ridiculously easy for us as well. I realize this is not the norm for this and am super thankful for it. Right now I'm trying to get the test strips authorized that he could use with the pump meter remote. So we will see how this goes......</span></span><br />
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<span style="font-family: Verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">My biggest frustration would be insurance companies having preferred items, insulins, test strips, pumps, there really needs to be a choice on the patients behalf since these items are being used on a daily basis to keep you alive. Some being attached to you 24/7, there should be a choice what you wear. Luckily for us everything we have needed has been covered....so far. </span></span><br />
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<span style="font-family: Verdana, sans-serif;"><span style="background-color: white;"><span style="line-height: 25.6px;"><br /></span></span></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-64076299936212367272016-05-18T12:57:00.001-04:002016-05-18T14:47:11.826-04:00Language and Diabetes-Diabetes Blog Week 2016<span style="font-family: "verdana" , sans-serif;">Topic for today:</span><br />
<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;">There is an old saying that states “Sticks and stones may break my bones, but words will never hurt me”. I'm willing to bet we've all disagreed with this at some point, and especially when it comes to diabetes. Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don't care, others care passionately. Where do you stand when it comes to “person with diabetes” versus “diabetic”, or “checking” blood sugar versus “testing”, or any of the tons of other examples? Let's explore the power of words, but please remember to keep things respectful.</span></span><br />
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<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: Verdana, sans-serif;">I honestly am one of the people that it really doesn't matter either way. I do try not to label him as "the diabetic." Usually if I'm introducing Justin to other people within the diabetes community I will say he's my T1D. Other than that he's Justin, and if they need to know he has Type 1 diabetes. I try not to let words bother me too much, diabetes is stressful enough for me, and him. </span></span><br />
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<span style="font-family: "verdana" , sans-serif;"><span style="background-color: white; line-height: 25.6px;">As for testing, sometimes we say check blood sugar other times I tell him to test....again, no big preference. </span></span></span><br />
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<span style="font-family: "verdana" , sans-serif;"><span style="background-color: white; line-height: 25.6px;">I just don't like if people are talking about diabetes in a uneducated way, not knowing facts, and blaming him, or me for it. That's when words hurt. </span></span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="background-color: white; font-family: Verdana, sans-serif; line-height: 25.6px;">#Diabetes with a slice of cake or indulgent dessert is really annoying also.....but mostly I try to ignore it because I don't need any added stress, as irritating as it is. </span></span><br />
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<span style="font-family: "verdana" , sans-serif;"><span style="background-color: white; line-height: 25.6px;">That's all I've got today...see you tommorow :)</span></span></span><br />
<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-3836181697743668162016-05-17T13:59:00.002-04:002016-05-17T13:59:59.369-04:00The Other Half of Diabetes-Diabetes Blog Week 2016<span style="font-family: "verdana" , sans-serif;">Topic for Tuesday:</span><br />
<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;">We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? How have you learned to deal with the mental aspect of the condition? Any tips, positive phrases, mantras, or ideas to share on getting out of a diabetes funk? (If you are a caregiver to a person with diabetes, write about yourself or your loved one or both!)</span></span><br />
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<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;">I am the caregiver (Mom) to a 10 year old kid named Justin :)</span></span><br />
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<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;">We have been on this T1D Journey for about 3 1/2 years now. Demanding isn't even the right word for it. I have gone from furious, to crying in a matter of minutes over diabetes and its ridiculous antics. </span></span><br />
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<span style="background-color: white; font-family: verdana, sans-serif; font-size: 16px; line-height: 25.6px;">It has gotten better over the last few years, although there are still times when I'm super frustrated & just need a good cry. I really just try to keep a positive attitude, if a high number shows up on the meter, we give a correction and move on. If a low number shows up we treat it and move on. I noticed really early on that if I let that meter control me and my emotions, it affected Justin more. So if he tests and 380 shows up...am I upset yes, but I'm just like dude, we gotta give a shot and maybe change that pump site. The only time I get more anxious is with anything under 55....especially if the dexcom is showing any arrow down. I feel my heart stop for a second, as I'm rushing to get him a juice to drink. </span><br />
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<span style="background-color: white; font-family: verdana, sans-serif; font-size: 16px; line-height: 25.6px;">There are many days when it just overwhelms me again, just the daily having to do all those things gets to you over time. I get super frustrated and cry then I feel better. </span><br />
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<span style="background-color: white; font-family: verdana, sans-serif; font-size: 16px; line-height: 25.6px;">As for Justin, he tends to bottle his feelings up over time. I'll ask him if he's had a flame thrower day after school. It's usually a no. He's had some rough times with other kids at school and the diabetes. We are working through those things, and they seem to be getting better. I know there are days when he's just over it, and I try to be encouraging and just help him. He tests himself, and boluses himself. But on those days when he's just not feeling it, I jump in. Whatever it is that helps him at that moment. Pricking his finger, bolusing from the remote. However I can relieve some of the stress he's feeling. We try to laugh about things, yes he usually laughs changing sites. He will just be silly, or something makes a noise and its just hysterical. </span><br />
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<span style="background-color: white; font-family: verdana, sans-serif; font-size: 16px; line-height: 25.6px;">We encourage each other alot. If he sees me getting upset he tells me it's ok. I do the same for him. And sometimes we've shared a good cry and you know what we felt better afterwards and then were back to fighting this battle full force. </span><br />
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<span style="background-color: white; font-family: verdana, sans-serif; font-size: 16px; line-height: 25.6px;">For us, "God didn't give us what we could handle, he's helping us handle what we were given".......</span><br />
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<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-51501471701146585182016-05-16T15:01:00.002-04:002016-05-16T15:01:51.340-04:00Message Monday-Diabetes Blog Week 2016<span style="background-color: white; font-size: 16px; line-height: 25.6px;"><span style="font-family: "verdana" , sans-serif;">Topic for Monday: </span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="background-color: white; font-size: 16px; line-height: 25.6px;">Lets kick off the week by talking about why we are here, in the diabetes blog space. What is the most important diabetes awareness message to you? Why is that message important for you, and what are you trying to accomplish by sharing it on your blog? (Thank you, </span><a href="https://unexpectedblues.com/" style="background-color: white; font-size: 16px; font-weight: bold; line-height: 25.6px;" target="_blank">Heather Gabel</a><span style="background-color: white; font-size: 16px; line-height: 25.6px;">, for this topic suggestion.)</span></span><br />
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<span style="font-family: verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">I started blogging not long after Justin was diagnosed in November 2012. It was a way for me to let family know what was going on and how we were doing. It was also a place for me to vent my frustrations. </span></span><br />
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<span style="font-family: verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">I wanted to start blogging because, before we had even left the hospital I was googling "7 year old son diagnosed with type 1 diabetes" and other similar searches. I came across many T1D Mom blogs and reading their stories gave me such relief knowing that I wasn't alone, and someone would understand exactly how I was feeling. Yes, I knew we weren't alone, but in the days that follow after your child gets diagnosed with a chronic disease, it's a very lonely place. </span></span><br />
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<span style="font-family: verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">My hope when I started was that another parent of a newly diagnosed child would find my blog & think the same as I did, relief that someone else felt the exact same way and understands. </span></span><br />
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<span style="font-family: verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">My biggest awareness message that I try to get through, whether on my blog or through facebook is the signs/symptoms of Type 1 diabetes. There have been way too many deaths due to undiagnosed T1D. When all it takes is a drop of blood, It breaks my heart that families have to deal with that. </span></span><br />
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<span style="font-family: verdana, sans-serif;"><span style="background-color: white; line-height: 25.6px;">Looking forward to sharing my thoughts over the next week with you!</span></span><br />
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<span style="background-color: white; color: #755a2a; font-family: "pt sans"; font-size: 16px; line-height: 25.6px;"><br /></span>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com8tag:blogger.com,1999:blog-3383342083332321204.post-41778127056264753032015-10-13T13:35:00.000-04:002015-10-13T13:35:04.633-04:00Be Thankful!<span style="font-family: Verdana, sans-serif;">I've got a lot on my mind lately regarding diabetes. It's been rather frustrating lately, we've had a few pump sites fail resulting in a blood sugar of almost 500. I hate that Justin has to deal with this rotten disease, I truly hate it. </span><br />
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<span style="font-family: Verdana, sans-serif;"> In the mornings when I go to wake him up, I sometimes for a split second will remember life before diabetes, and how peaceful he looks at the moment. Then I will see the p</span><span style="font-family: Verdana, sans-serif;">ump site or Dexcom site peeking out from under his shirt and be thrown back to reality. My heart aches for him. </span></div>
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<span style="font-family: Verdana, sans-serif;"><br />But as much as it sucks living with this disease, he's here with me. There have been too many stories this year about children that didn't make it because of misdiagnosis. It makes me sad & angry that it's being missed by doctors. I think the first thing that needs to happen is people getting over the thought that diabetes is because of eating sugar/junk food. That's tough to do since even childrens movies make fun of diabetes. If you haven't already Hotel Transylvania 2, has a comment about eating cake and getting diabetes. :-/<br />
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I'm trying really hard not to complain about diabetes, especially on Facebook where I know I have a friend who lost a child to this. Its not fair at all. People come into our life for reasons and this is something I need to get past. I do not want that vibe passed onto Justin, he knows he can do anything & this isn't going to stop him! <br />
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-30713027449327390452015-08-09T19:44:00.001-04:002015-08-09T20:27:23.838-04:00Justin goes to T1D Camp!<span style="font-family: Verdana, sans-serif;"><div class="separator" style="clear: both;"><br></div>Justin decided that he would like to go to sleep away diabetes camp this year, he was nervous about it, but he wanted to go. It's a week long camp, drop off on Saturday, pick him up the next Saturday. The camp is about 3 hours from us. </span><div>
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<span style="font-family: Verdana, sans-serif;">Labeling everything and packing was so much fun lol.....luckily next year he has everything, and I'll just get clothing stickers to make the labeling go faster, I procrastinated this year and it got to late to order them. </span></div>
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<span style="font-family: Verdana, sans-serif;">When I started getting everything together, and packing Justin was getting really excited. It was a mix of excitement & nervousness. On the drive up he was really excited! </span></div>
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<span style="font-family: Verdana, sans-serif;">We checked him in and then Chris went to his cabin with him while I was handling the medical intake stuff. By the time I made it to the cabin he was settled in and already being rowdy with the other boys lol. After the counselors asked what they needed, we were off to the parent meeting. Said bye to Justin, and he was ready for us to go...didn't even give me a hug bye, just said "bye, Mom" as in you can go now. We went over and talked to some of the vendors, and stayed for the parent meeting. </span></div><div><span style="font-family: Verdana, sans-serif;"><br></span></div><div><span style="font-family: Verdana, sans-serif;">We left around 4 and headed to Orlando for a night, it had been way too long since we had a night away. The week went pretty fast, I was constantly looking on the camp Facebook page to see if they added pictures lol. We enjoyed our quiet time and couple only dinners. 😊</span></div><div><span style="font-family: Verdana, sans-serif;"><br></span></div><div><span style="font-family: Verdana, sans-serif;">Won't lie though we missed out kiddo! It was really strange without him around. </span></div><div><span style="font-family: Verdana, sans-serif;"><br></span></div><div><span style="font-family: Verdana, sans-serif;">We were excited to pick him up and he was happy to see us and had so much to tell us! He had an eventful week, his first pump site failure, he had large ketones and was vomiting one afternoon. They were going to put him on shots for the week but changed the pump site...3 times that day and everything was fine the rest of the week. Justin told me when he was throwing up he just wanted to come home because "his mom will know what to do". Poor kid! But he stuck it out and had a blast! Next year I think I will get his Dr to give me dosing for Lantus and just let him have a pump break for the week so he doesn't have any issues. </span></div><div><br></div><div><font face="Verdana, sans-serif">I was worried about him not eating because he such a picky eater, he ate most everything. He said 2 dinners he didn't eat..the only other option was PB&J and he doesn't like that either lol. So I felt bad he was hungry. But he told me all of this but didn't seem real bothered by it, just bothers me. </font></div><div><font face="Verdana, sans-serif"><br></font></div><div><font face="Verdana, sans-serif">He said they went swimming in the lake everyday. He loved the blob!! He got to do archery, art, & they had all kinds of games and activities. He loved the carnival! He said he was helping do the tattoos at his cabins table. He said a couple of the boys in his cabin had dates to the luau...what?! lol. But they didn't talk to the girls at the luau. Cracks me up!! I'm certain he has a ton more stories to tell me it will take time to get them all out. He talked non stop for about an hour on the way home about everything. He said he really missed us but he had so much fun! I could tell, he had a smile that I hadn't seen in a while. Don't get me wrong he smiles but it was different. He had a sparkle in his eyes and his spirit seemed to be renewed. He said he would go again next year 😊 Hurry up summer 2016 lol. On his shirt it says "miss home for a week, miss camp for a year" So thankful for the camp and everything they did for Justin and all the campers. I can only imagine how awesome it is to be in world where no one is staring at you wondering what your doing when checking bg or giving insulin. Thank you Florida Diabetes camp!! </font></div><div><font face="Verdana, sans-serif"><br></font></div><div><font face="Verdana, sans-serif"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhv-_LvlphMF8yy3d3QTrx8_bw2BbL-bwm-iDzsQHFHL3gTtcv0UODTE3CBxYCdUMZsrOppo9ZaB4wA646FCQ6SRpzC1b4fixGrq6KKSBpevRidGcSbJwbP8yMt0oTBSpBBUbmROGyhpOs/s640/blogger-image-742507488.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhv-_LvlphMF8yy3d3QTrx8_bw2BbL-bwm-iDzsQHFHL3gTtcv0UODTE3CBxYCdUMZsrOppo9ZaB4wA646FCQ6SRpzC1b4fixGrq6KKSBpevRidGcSbJwbP8yMt0oTBSpBBUbmROGyhpOs/s640/blogger-image-742507488.jpg"></a></div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqDq2vj3lsSicWrhc1LTmAUzKZKucRcxQxnPpdKIm7IJluH0x3S6_Sxb2aXhKIsoHc6yYKg3PcPL1ca_iKDa8Q0c03eYFY_9YgUw0JONYLIhS3qqfRbS3rDYJ90XFRrOGOkNkubnnYTuM/s640/blogger-image--1301265758.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqDq2vj3lsSicWrhc1LTmAUzKZKucRcxQxnPpdKIm7IJluH0x3S6_Sxb2aXhKIsoHc6yYKg3PcPL1ca_iKDa8Q0c03eYFY_9YgUw0JONYLIhS3qqfRbS3rDYJ90XFRrOGOkNkubnnYTuM/s640/blogger-image--1301265758.jpg"></a></div><br></font></div><div><font face="Verdana, sans-serif"><br></font></div><div><font face="Verdana, sans-serif"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9wQPuwf25CrVgV7imUvzTTmfXFhml8WfJ3sdgKS61MaqGLl61puX6dDUPGqPSWyx5eorY5qnB-M_-Ml2dorCCw6Yx39ttSvz3qjyPm8F8fo4s86fFaMcMgTN6RR3WowFNH-4_B-S60I0/s640/blogger-image--742322786.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9wQPuwf25CrVgV7imUvzTTmfXFhml8WfJ3sdgKS61MaqGLl61puX6dDUPGqPSWyx5eorY5qnB-M_-Ml2dorCCw6Yx39ttSvz3qjyPm8F8fo4s86fFaMcMgTN6RR3WowFNH-4_B-S60I0/s640/blogger-image--742322786.jpg"></a></div><br></font></div><div><font face="Verdana, sans-serif"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZIXhSxLExxN7zby_GaZQhDF6ex-3zU5uZQqu1VUkmW9GoqlXpZ9uvsrV7uMyqyNjWTZvTbTcQabUuGOQugr91FojNsxRl-nFomXmWcnxYf6PydHRhk2PJU1xM4f9GOpJOgkuS4HgsV7E/s640/blogger-image-949519785.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZIXhSxLExxN7zby_GaZQhDF6ex-3zU5uZQqu1VUkmW9GoqlXpZ9uvsrV7uMyqyNjWTZvTbTcQabUuGOQugr91FojNsxRl-nFomXmWcnxYf6PydHRhk2PJU1xM4f9GOpJOgkuS4HgsV7E/s640/blogger-image-949519785.jpg"></a></div><br></font></div><div><font face="Verdana, sans-serif"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmoQuUEpI73wcLqO9mxnxfNyQ300LlezHF6BRM83mqbQhQG65kZajgVXeiVv0N4aLSwi84NNkJetKqT4eXCXD24BbramT2FTi5KrK8aG68PtDdkUrJcgA5O5BwVu1fs6VAseYGcmg5ZRI/s640/blogger-image--69648807.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmoQuUEpI73wcLqO9mxnxfNyQ300LlezHF6BRM83mqbQhQG65kZajgVXeiVv0N4aLSwi84NNkJetKqT4eXCXD24BbramT2FTi5KrK8aG68PtDdkUrJcgA5O5BwVu1fs6VAseYGcmg5ZRI/s640/blogger-image--69648807.jpg"></a></div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDXjjlsVMM4sAT35MN7IOtGFkNijZ-32AjDq2xe8XFJlS6j46G2qpHkGlkgAq2WqLkQNpzFtRNJAg2n8M463f1uxq_3dOBxWKSTg2LEQWlVjY20RckN6acklGUrl1_X-rkIn_IEZdvCVY/s640/blogger-image--715649817.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDXjjlsVMM4sAT35MN7IOtGFkNijZ-32AjDq2xe8XFJlS6j46G2qpHkGlkgAq2WqLkQNpzFtRNJAg2n8M463f1uxq_3dOBxWKSTg2LEQWlVjY20RckN6acklGUrl1_X-rkIn_IEZdvCVY/s640/blogger-image--715649817.jpg"></a></div>On the way home, looking all tan and happy😊</font></div>
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-92180104859295537522015-05-13T17:58:00.001-04:002015-05-13T18:49:30.068-04:00Clean it Out - #DBlogWeek - Day 3<span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">Yesterday we kept stuff in, so today let's clear stuff out. What is in your diabetic closet that needs to be cleaned out? This can be an actual physical belonging, or it can be something you're mentally or emotionally hanging on to. Why are you keeping it and why do you need to get rid of it? (Thank you Rick of <a href="http://www.radiabetes.com/" target="_blank" style="text-decoration: none;">RA Diabetes</a> for this topic suggestion.)</span><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">As far as supplies go, I'm pretty organized. We don't have much closet or cabinet space so I use the plastic drawers. Not the most decorative but it works. Originally the supplies were on the counter, then I moved it to a drawer, then a cabinet, and it was all over the place lol. That's when we cleaned out and got the plastic bins. Now it's all together, besides the insulin that fills up where the butter should go haha!! </span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4yZWxlga7lvcXrMzXwR3GbCPYJD-kXrk8Tmd2fF6aQAGdW_0fGp9a21Ck1kJrfeoRX5vbtoFRIIjVyrkE2hLk4K-Tl53Y7bRxxkO3TFa-2odm4T8yo8aV9vsHVfNupcI8IfzpFJ4Yl2o/s640/blogger-image-1231096437.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4yZWxlga7lvcXrMzXwR3GbCPYJD-kXrk8Tmd2fF6aQAGdW_0fGp9a21Ck1kJrfeoRX5vbtoFRIIjVyrkE2hLk4K-Tl53Y7bRxxkO3TFa-2odm4T8yo8aV9vsHVfNupcI8IfzpFJ4Yl2o/s640/blogger-image-1231096437.jpg"></a></div><div class="separator" style="clear: both;">Piles of stuff that had accumulated over 2 years.</div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiz5PI6gz6gYmZqftaI8iY4q-DeZEAyrvF4O3ZR0slL1c16m4VURakw4oCYgNOMoMyWRVc5xI5gyliBRLGKO6_sygh-E9U2-6YBrZ9HhYe-tmVMo_DBxtxzBFUqH_OCTGNBMagUhk2_lPs/s640/blogger-image--64996474.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiz5PI6gz6gYmZqftaI8iY4q-DeZEAyrvF4O3ZR0slL1c16m4VURakw4oCYgNOMoMyWRVc5xI5gyliBRLGKO6_sygh-E9U2-6YBrZ9HhYe-tmVMo_DBxtxzBFUqH_OCTGNBMagUhk2_lPs/s640/blogger-image--64996474.jpg"></a></div>Nice and organized ;)</div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">Emotionally, I'm not sure if in hanging on to anything. I probably am and don't realize it. I've accepted that he has T1D, and that the possibility of a cure may not be a reality in his life. Although we walk and fundraise, it may not directly help find a cure. However there are things that will most likely be available in his life that will make managing it easier. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><br></div><br></div><br></span><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div></div>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-49181595481712392862015-05-12T07:22:00.001-04:002015-05-12T20:10:48.720-04:00Diabetes Personified(wildcard) - #DBlogWeek Day 2<div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">Topic for today - I picked a wildcard :-)</span></div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div>If you could personify your diabetes or that of your loved one, what would it be like? What would it look like, what would it say, what kind of personality would it have? Use your imagination and feel free to use images, drawings, words, music, etc. to describe it. (Thank you Reva of <a href="http://www.typeonederful.com/" target="_blank" style="text-decoration: none;">Type ONEderful </a>for this topic suggestion.)</span><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">Hmmmm.....good question. I'm gonna ask Justin for some help and see what he says.</span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">Diabetes personality according to Justin:</span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">It would say: "I hate this person & I wanna take over his body" </span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"> </span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">It would look like: "a little green germ that has an evil hat on"</span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">It's personality would be: "a poop head evil jerk" LOL!!!!</span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSOkkTy_3AmZmR2edPDXZjp95KeNhmUTtrnoWzCn-KJ5Dn5CljdQhwMHcZlgjQM9EiqbFKXylBWuCSEUoY8YMb0h3VGx9YdmKqtohuN6pe6Dg37jb5iqwo9mvGraoaCcpNJ6h6s0ri76I/s640/blogger-image--2102176647.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSOkkTy_3AmZmR2edPDXZjp95KeNhmUTtrnoWzCn-KJ5Dn5CljdQhwMHcZlgjQM9EiqbFKXylBWuCSEUoY8YMb0h3VGx9YdmKqtohuN6pe6Dg37jb5iqwo9mvGraoaCcpNJ6h6s0ri76I/s640/blogger-image--2102176647.jpg"></a></div><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"> </span></div>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com6tag:blogger.com,1999:blog-3383342083332321204.post-67963252350066878272015-05-11T17:48:00.001-04:002015-05-11T21:09:41.875-04:00I Can - #DBlogWeek Day 1<span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><i><b>Today's topic: </b></i></span><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">In the UK, there was a diabetes blog theme of "I can...” that participants found wonderfully empowering. So lets kick things off this year by looking at the positive side of our lives with diabetes. What have you or your loved one accomplished, despite having diabetes, that you weren't sure you could? Or what have you done that you've been particularly proud of? Or what good thing has diabetes brought into your life? (Thank you to the anonymous person who submitted this topic suggestion.)</span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">Being completely honest, when Justin was diagnosed it felt like our world completely crumbled down. I wasn't sure what he would be able to do. One of the very first things his endocrinologist said to us was "He's still your same little boy & he will still be able to do anything he wants." </span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">He was diagnosed just a few days before Thanksgiving. He missed 1 day of school and he was back when everyone else was. He resumed scouts without missing any meetings. I tried hard to not avoid anything because of T1D. I am proud of everything that Justin does no matter what it is. After all he has this extra thing to deal with that most kids don't. At the moment while I'm typing this were at karate class. Diabetes does not keep him from anything!</span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">I am certain he will be able to do whatever he wants as he grows up! With role models like Ryan Reed (NASCAR driver with T1D), he knows he can do ANYTHING!! Those that are reading this and not race fans may not really understand just how awesome it is what Ryan Reed is doing, they drove at about 180mph+, it's extremely hot inside the cars, and it takes strength and concentration to keep the car on the track! </span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">I would have to say the best thing that has happened since diabetes entered his life would have to be the friends we have made. Friends that help each other out and listen to you vent and completely understand what your talking about. </span></div><div><span style="-webkit-text-size-adjust: auto;"><br></span></div><div><span style="-webkit-text-size-adjust: auto;">💙💙💙<br></span><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div></div>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com1tag:blogger.com,1999:blog-3383342083332321204.post-4361208389708565252015-02-25T12:23:00.000-05:002015-02-25T12:25:19.069-05:00Never give up on your dreams<span style="font-family: Verdana, sans-serif;">It's been a while since I blogged :) </span><br />
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<span style="font-family: Verdana;">Not too much has happened in our diabetes world, just on cruise control doing what we gotta do. The only new addition is the dexcom! We love Dex :) Justin is getting excited about the JDRF walk coming up in a couple weeks. Me too! It's always fun to spend the morning with family & friends. </span><br />
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<span style="font-family: Verdana;">This last weekend we went to Daytona for the Alert Today 300 Xfinity Series race. We always love the chance to be at the track supporting our fave driver Ryan Reed! Not sure why I didn't blog about it, but in November at Homestead-Miami Speedway we got to meet Ryan! We were the only ones waiting where he was going to do his interview, waiting for about 40 minutes lol....of course after he was there it was more crowded but I wanted to make sure Justin was right in the front ;) <br />
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This year in Daytona, we just happened to be in the right place at the right time. In the fanzone there are some games for the kids, and when we first walked by was busy, so we did other things and then we were heading back to them, and I thought I seen a couple of people wearing the fancy Drive to stop diabetes shirts so I stopped to look and then here comes Ryan walking up behind them, he waved and said hi to us :))))) That made for a super happy kiddo!! Then during driver intros, Justin yells to him "I like your cowboy hat" and gives him a thumbs up, and Ryan smiles and returns the thumbs up! Again Justin was so excited! Ryan Reed is such an awesome role model for our kids with T1D. We were so happy that he won his first Xfinity Series race! What an accomplishment!! He just proves that it doesn't have to stop you from anything! <br />
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I first heard about Ryan right after Justin was diagnosed, in searching the internet for anything and everything I could find I came across a picture of Ryan and his race car at the time covered with JDRF logo. He wasn't racing in NASCAR at the time but I started following him on facebook, and loved his story. I was so thrilled when he started racing some Nationwide races since those are the races and tracks were close to. We were at a race the day before Justin was diagnosed, and he had a miserable time, so each time we get to go to the track and enjoy ourselves its just awesome! <br />
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Ryan is quite the buzz in the DOC now that he's won a race, but he's been inspiring us for 2 years now :)<br />
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Diabetes tried to ruin our fun on Saturday at the race, he had a bad low, 39. All the walking mixed with not finishing breakfast.....it totally sucks when your trying to have a good time and then you have to watch your child go through that, looking pale as a ghost and staring into space. It really does suck. But he recovered after almost 70 carbs uncovered, never spiked and was good the rest of the day. He even had a hotdog bun and all uncovered. I hate how quickly he can drop. But I'm thankful we caught it and treated. And we went on to have a wonderful day! </span><br />
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<span style="font-family: Verdana;">Enjoy these pics from our little weekend getaway :)</span></div>
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<tr><td class="tr-caption" style="text-align: center;">Me and My guys enjoying the race this last weekend in Daytona 2015</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Ryan Reed & Justin @ Homestead-Miami Speedway 2014<br />
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My guys riding the bus over to the track ready for a fun day!<br />
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Enjoying the Ferris wheel in the midway.<br />
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Me and Justin on the bus back to the parking lot<br />
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My family at DisneyQuest<br />
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-7886804456954044972015-01-07T20:33:00.001-05:002015-01-08T08:47:37.248-05:00Thoughts for the day......<div dir="ltr">
Have been having alot of emotions again, most of the time they are there, just keep them inside and go about what we have to do. So on Sunday at church I walk into the classroom to pick him up and he was sitting there with a few other kids praying. It was super cute he was sitting there with his hands folded and head bowed. As we were leaving he says "Mom, you know what I was praying about?" Thinking he was going to say something about having no more homework or something lol...no he says I was praying for my diabetes to go away :( </div>
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Then today his dexcom was really off for a while, and was alarming him at 55, and it makes the crazy beeping. So he calls me and I tell him he can have his bag of chips. Well he goes back to his class for aftercare and some of the other boys start picking on him, because his dex was beeping and he was having a snack. Saying come get your chips or some nonsense, and laughing. I totally wish those kids who think its funny to make fun of him could deal with diabetes for a day, all the needles, having snacks when your not really hungry, feeling like crap from a low. Anyone with T1D, is truly a superhero, its not easy. I'm sure first bg check and those kids would be whining and crying they have to do it, same with an insulin shot or pump site change. I really wish people would teach their kids some compassion, instead of how to be little jerks. <br /></div>
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The end.</div>
JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-78078231574485177092014-10-30T15:35:00.001-04:002014-10-30T20:21:11.523-04:00Halloween with T1D.....Yes Justin can eat candy!<span style="font-family: Verdana, sans-serif;">One of the first things alot of newly diagnosed families think is "How will my child enjoy holidays such as Halloween, when so much candy is involved?" I will admit at first its tough especially when on MDI (multiple daily injections) My advice is to talk to your childs Dr. about it and how you can dose for an extra treat. I brought that up very early on with Justins Endo because he was so hungry and I felt like I needed to give him more food and it was especially tough to stick to 45 carbs at dinner. So she gave me a starting I:C ratio for him. </span><br>
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<span style="font-family: Verdana, sans-serif;">Justin is almost 2 years into this new life, and I refuse to let diabetes ruin any of the fun of childhood for him. Yes it puts a damper on it, who likes getting poked EVERDAY!! But Justin is handling it as well as can be expected, its part of his life and he does what he has to do. </span><br>
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<span style="font-family: Verdana, sans-serif;">**Before I continue, I am not a Dr, before you change the way you do anything with your childs care speak to their endo team** </span><br>
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<span style="font-family: Verdana, sans-serif;">I am just sharing how we handle the candy overload. </span><br>
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<span style="font-family: Verdana, sans-serif;">Last year, Justin ended up low from all the walking around and ended up needing some of the candy. But normally I will separate the candy (faves for treating lows, everything else he likes, and the junk lol) </span><br>
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<span style="font-family: Verdana, sans-serif;">Then I will let him eat a piece or two each night with his dinner. It just gets added to his carb count for the meal. It makes him happy to actually enjoy a piece of candy without having to rush and eat because he's low. </span><br>
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<span style="font-family: Verdana, sans-serif;">I don't deny him anything within reason because of the diabetes. </span><div><span style="font-family: Verdana, sans-serif;"><br></span>
<span style="font-family: Verdana, sans-serif;">I've added a carb count sheet for candy to make it a little easier, mines printed out and hanging on the fridge. </span><br>
<span style="font-family: Verdana, sans-serif;"><br></span><span style="font-family: Verdana, sans-serif;"> HAPPY HALLOWEEN EVERYONE! </span><br>
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<span style="font-family: Verdana, sans-serif;"><br></span></div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKAnv-G-Cu6idx98qy2KBHIsCy3dIywase7FVw-NxnQ_5SQPa9ZC1-pMqpmwSx9ZthAzJ1vKy9PGMvmSaPOScgW-acBhvc3YgEQPI4F-vIfS4Me_58yl1WzD1HXLzoAhl9eVII7maCK-0/s1600/Screenshot_2014-10-30-20-15-47-1.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKAnv-G-Cu6idx98qy2KBHIsCy3dIywase7FVw-NxnQ_5SQPa9ZC1-pMqpmwSx9ZthAzJ1vKy9PGMvmSaPOScgW-acBhvc3YgEQPI4F-vIfS4Me_58yl1WzD1HXLzoAhl9eVII7maCK-0/s640/Screenshot_2014-10-30-20-15-47-1.png"> </a> </div>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com0tag:blogger.com,1999:blog-3383342083332321204.post-22174944199860572992014-08-02T20:36:00.001-04:002014-08-05T11:20:46.855-04:00The Rapids Waterpark with the JDRF!<div dir="ltr">
What a fun day!! The JDRF treated us to a day at The Rapids waterpark for their back to school event! </div>
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I got to talk with the Dexcom rep and I'm gonna get him our insurance info and he's going to check if they will cover it. I'm not sure Justin will wear another site, but if its covered we'll try! And he already thinks it's cool because Ryan Reed uses one :) </div>
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We got to see alot of our old friends, and make some new ones! A few of the ladies I had talked to already on facebook, or on the phone or text LOL So I felt like I already knew them! I was so happy the boys all got along great and had a blast! </div>
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The boys were watching out for each other, they came back over where we were sitting when Justin felt low. The boys were even off on their own for a while....Got a little nervous, but then they floated by on the lazy river :) Justin loved having freedom to go off with his friends, I felt comfortable enough that they were looking out for each other and would come get us if something was wrong. </div>
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I totally enjoyed getting to chat with other D Moms all day, It's nice to talk on facebook and such, but its really awesome to talk in person!! </div>
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Blood sugars were all over the place, and ended really high. Gave a correction and 2 hours later....low. Can't win sometimes! Today was site change so did that when we got home, and BG was good after dinner, 111. </div>
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Can you spot the pumps in the picture lol..........</div>
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JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com1tag:blogger.com,1999:blog-3383342083332321204.post-31428813779113844652014-07-26T20:21:00.001-04:002014-07-26T20:55:14.314-04:00Proud D-Mom Moment<p dir="ltr">So on Friday Justin had a fun day at camp, as usual. They went to a big arcade place that had lots of other things besides the arcade to do. Then when they got back to campus they went swimming. Well while they were swimming a couple of boys were picking on Justin, saying he had dia booties, and other nonsense. Well Justins buddy wasn't having it and told the camp counselor. Well she really got those boys and put them in their place, I'm so happy that she stood up for him. It could have been so easy for her to just tell them to stop and walk away. Your probably wondering how the fact that kids picking on my sweet boy makes me proud. Well that part doesn't at all and makes me quite angry, but I'm happy that his counselor was there to stick up for him. Well after she put them in their place she turned to Justin and asked him "Is there anything wrong with you?" His response "NO".........That is absolutely the correct answer!!! He makes me so proud!! We try so hard to help him realize that yes he has to do all these things alot of his friends don't, but he's not different, and he can do anything he wants. Sometimes I wonder if he believes that, and I'm sure he doesn't always especially if its a rough D day. But in that moment he made me so proud. When the counselor was telling me what happened I had tears in my eyes. I'm honestly a ball of emotions ready to explode sometimes, any little thing just makes me want to cry. Its gotten easier over the last year and 8 months, but the emotional side of this for me still gets to me so easily. </p><p dir="ltr"><br></p><p dir="ltr"> This is absolutely how I feel about Justin :)</p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhquSreN5-ogrO6J8AzdQuNngFql9vbgi9EaNfBk4wPI3XJt2D9eW2xPFYSFoF7OQDuLlIz0vM_TCphwYbFwpMdeL0PVwLkWjkwlXRLBHnwpil28S5WcoQ2911F78yH0BWp7FPRSEET0wQ/s1600/IMG_260371926662664.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhquSreN5-ogrO6J8AzdQuNngFql9vbgi9EaNfBk4wPI3XJt2D9eW2xPFYSFoF7OQDuLlIz0vM_TCphwYbFwpMdeL0PVwLkWjkwlXRLBHnwpil28S5WcoQ2911F78yH0BWp7FPRSEET0wQ/s640/IMG_260371926662664.jpeg"> </a> </div>JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-49941683246745801452014-06-22T20:25:00.001-04:002014-06-22T20:25:30.378-04:00Ping Pumping!<p dir="ltr">Justin has been pumping insulin since Thursday June 19.  It has only been 3 full days but we are loving it!!  Justin is just thrilled not having to get 3-4 shots a day!  He doesn't mind having the pump on him, he seems really happy about it actually.  He calls it his robot pancreas LOL!  Site changes and prepping the pump are super easy, I asked Justin if he wanted me to get the Dr. To give us a Rx for EMLA cream, and he said no, he's a tough guy & it doesn't hurt that much.  </p>
<p dir="ltr">The first day his numbers were excellent, which surprised me because I was expecting crazy high numbers.  This weekend he's had some higher numbers, but when I bolus him 2 hours later his number is great.  So we'll see if the Dr. Adjusts anything on Friday.  </p>
<p dir="ltr">We both LOVE the remote!!  He loves that he can hop up to the table to eat and I can bolus from the kitchen LOL  Its the little things :)  I love when were out eating I don't have to get out the insulin pen, He can sit across from me and get his dose.  Its really great so far!  </p>
<p dir="ltr">Other than a few high numbers, its been smooth sailing for him so far!  He's enjoyng the freedom from the syringe & strict NPH eating schedule. </p>
<p dir="ltr">I'm so happy for him to finally be pumping, he's just as happy......if not more!</p>
JMom528http://www.blogger.com/profile/07873422290629642828noreply@blogger.com2tag:blogger.com,1999:blog-3383342083332321204.post-35633927739516045412014-06-14T18:50:00.001-04:002014-06-14T18:55:34.359-04:00Hello Ping!<p dir="ltr">I am so excited!! Justin finally is hooked up to the Animas Ping pump. It was a bumpy road, but we made it here! </p>
<p dir="ltr">We started talking with his endo about him going on a pump at the end of last year, but decided due to ins and deductible we would wait until after the new year. Well new year and we were without ins, and I was trying to get Justin on a plan offered by the state called Healthy Kids, its available to any kid :) Well the application process took forever and I never recieved anything saying he was accepted, what the payment was, nothing. I logged into the website and it said active and my payment was late, so I paid. They had enrolled him in a plan for medically needy kids and we were assigned a "nurse" Well over the next 7 weeks, I left at least 10 messages for this person to call me so we can set up his endo appt and get his prescriptions. No return call....I had only spoken to someone at the very beginning to set everything up. In order for him to be on this plan we had to leave the endo he was seeing that we absolutly love, and now I couldnt get a return call and appt with new endo, very frustrating. We decided after I talked to a friend on a different plan who was still seeing the endo we love that we needed to switch him over to that plan. My husband made a call to switch and let them know that we weren't receiving any call backs and he needed to be seen asap and they made the switch available as of the first of the current month, instead of us having to wait till the next. </p>
<p dir="ltr">As soon as I had the ID number I called his endo to make an appt, and got one almost immediatly and it happened to be an appt my friend had just cancelled LOL...it was meant to be. Finally the wheels were turning again. We had to make another tough decision in switching to the new plan, his pediatrician was not on it......it was not easy but we see the endo more now, and the new pediatricians office is wonderful. Things were finally working out after months of constant worrying about how we were gonna pay for his prescriptions, and when he would see the endo. <br><br>
At that appt we started the pump paperwork and It was quicker than I expected, we had the pump 3 weeks later:) And it was killing me on the counter waiting to go to pump training 2 weeks later. So we went last Thursday June 12 for training and we have saline in the pump for this week. The pump is super easy to use, which is a huge relief because the video that came with it had me so worried! The trainer said all the pump videos are like that, and they should make a beginner video that doesn't have info overload. I love the remote with the pump, its easy to enter carbs and BG and give a bolus. Justin LOVES it too! He keeps saying I can't wait until we have insulin in it! Me too kiddo, me too!! </p>
<p dir="ltr">I'm prepared for a few weeks of craziness while trying to adjust all the basals and everything. Should be fun, NOT! But totally worth it!!!!</p>
<p dir="ltr">Justin is so excited about it, and that makes it all worth it, instead of 9-12 shots every 3 days it will be 1 site change! That right there is just awesome! I can't wait to get started next Thursday doing the real deal :)</p>
<p dir="ltr">Here's my happy pumper & his new ID bracelet from American Medical ID, one of Ryan Reeds sponsors of course, he decided he wanted a bracelet because the necklace would catch on his hair sometimes and he picked this one out :)</p>
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